Plateau'ing is normal

Today we looked at A-One's brain training scores over the last week. He seems to be playing about three to four times a week at present.  His scores are still at a plateau; he's now at 42.7th percentile overall.  However his Flexibility has been showing a steady increase, now at 48.2nd percentile.

Mum: I was reading in the Lumosity blog that plateau'ing is a common pattern when learning something new, and that sometimes sharp rises can occur and then be sustained.  That's certainly been your pattern, A-One.  The important thing is that you keep doing it, because your brain is working on it even though it doesn't seem to show in your scores right away.

A-One: Well, I didn't have internet for some days.

Mum: But you do now, so you should play today to catch up.

A-One: Yes, I will.

Perhaps he has been encouraged by his test report.  I haven't managed to get him to try CogniFit yet.

He's a Sharpshooter!

I was listening to a 'Founder Story' of Mike Scanlon, Lumosity's Chief Scientific Officer today.  He made reference to a broader cognitive test that Lumosity members can use every few months to see how their cognitive capacity is going as distinct from how well they are performing in the brain exercises.  (Note: It doesn't seem to work with IE 10, but does with Chrome.)  I can't find a link from the Lumosity website, but I had an email record of the URL from my initial inquiry to Lumosity.

I can't recall why I didn't get A-One to do it initially because that had been my plan.  Perhaps I had thought that limited levels of co-operation were better directed to the actual brain training.

Today he was willing enough to do it.  His test results tell him that his strengths are Speed and Attention. Problem Solving is rated above Memory which is his weakest, even though Memory is his area of strength in the actual exercises and Problem Solving his weakest. The report notes that Attention is good for driving. Imagine that! For a boy who had been told all his life that he needs to be kept on task,  had been on ADD medication for a while, and last year told by the neuropsychologist that he shouldn't get his drivers licence.

I love the encouraging way the report is presented and the smile on A-One's face when he read it: A-One, you are a Sharpshooter! Quick, observant and incisive.  You easily take in information and use penetrating insight to make quick decisions.  With a keen sense of spatial orientation, people with these strengths make natural athletes and navigators.   His overall score also put him in the 'about average' range for people in his age range.

(Would WOW also have something to do with this?)

Mum: See A-One, I think for someone who has your capabilities, it's criminal that you're not out there working or learning an occupation.  And you should be playing to your strengths - get to the gym three times a week!  or Tae Kwon Do or Roller Blading. I'm happy to take you.

A-One: I'd like to go to gym.

Mum: Great.  What time of the day do you want to go - and it should be at least 3 times a week.

He's still thinking about that one.

Mum: For someone who is decisive, it shouldn't take too long for you to make a decision about that.

A-One: I don't think I'd do very well at TAFE, because I struggle with the theory.

Mum: Don't base all your decisions on what you were good at, or not, at school.  Remember all this brain training is to enable you to do those things.  It's not because I'm 'into it' that I'm getting you to do brain training.  It's to make it possible for you to do those things that you are interested in!

A-One: OK.

CogniFit

I've just had a good look at CogniFit.  And it's fun. I saw it referenced in a Friends of SharpBrains LinkedIn discussion.

It's also in SharpBrains list of vendors to watch in 2013/14 and is based on peer reviewed research, although mainly for aging adults. It includes some very interesting features:

• You can register for free and get some free 'neurons' which is like a currency
• You can do an assessment first up to get your profile of cognitive strengths and weaknesses as well as how you compare with others in your age range
• Cognitive abilities are described at quite a granular level e.g. not just Memory, but working memory, short-term memory, contextual memory
• You can earn more 'neurons' by training and 'unlock' new games by spending your neurons, or you can purchase more neurons (with real money) to play more
• You can bet your neurons to win more
• You can challenge other players
• The training is tailored based on your assessment
• It's fun

I hadn't investigated this site in depth before because it's pitched to keeping your mind agile as you age, but I think it would be really good for A-One - especially if we can get some other players for him to play with.  It seems to have incorporated the appeal of online multiplayer games e.g. like WOW and the chance of notching up your 'neurons' to play more.

I'm pretty excited about it as it seems to include a number of features that I've been looking for in relation to A-One, in particular the assessments which can be done at any time, the increased granularity of cognitive abilities including planning, the ability to choose specific games for these, and the ability to play with and challenge others.

I've done several training sessions today and have not had to pay any real money. 

(I started using my mouse left-handed several years ago, mainly to ease some tension that had been developing on the right side of my neck from a highly stressful job.  But for these games today I quickly switched to my right hand because the speed challenge sucked me right in!)

Now the hard part is gaining A-One's willingness to try it.

I'm just not that into it Mum

Mum: A-One, I want to get your scores on the last couple of Lumosity games you've played.

A-One: No, not now!

Mum: I told you about an hour ago that I'd be coming to get your scores.

A-One: Not until I've done my games today.

Mum: I'm not waiting until midnight to get your scores for the last couple of days.

A-One: It won't be midnight.

Mum: All you need to do is 'brb' to your WOW mates!  I'm not waiting until tonight! I've given you plenty of notice.

Under sufferance he logged on to get his scores.

Mum: You're now at 40th percentile overall!

A-One (dully): Yes.

Mum: And you are in the 40s for both Attention and Flexibility!  All you need to do is relearn your tables and number facts and your Problem Solving would shoot up too.

A-One: I know what I have to do Mum.

Mum: Sigh.

It takes work to reach your goal

A-One: I know! I know what I have to do Mum!

A-One's response to my urging him to start looking at websites that might guide his efforts in looking for employment. Are his job goals realistic?  What steps to find out more?

I had selected a blog to encourage him to stick with the discipline required to make progress, hoping he'd make the connection with the consistent effort required to make his brain training work, and the work required to find a suitable job.

Mum: What do you think this blog is about?

A-One: It doesn't mean anything to me.

Mum: Well, what did Aristotle say?

A-One read it again: That we are what we repeatedly do.

Mum: And how many hours before you become an expert at anything?

A-One: They reckon 10,000 hours.

Mum: That could be about 5 years.  Is there anything you're an expert at?

A-One: Well, there'd be things I'm pretty good at, but I'm not an expert.

Mum: ... let's move on.  The next thing to look at is this website to help you see if you'd like to have any of these jobs.

A-One selected 'Nature and Recreation' then 'Performing Arts'.  It was the recreation part he was interested in, not nature.  He eventually looked at sound/audio technician.  Then an audiovisual technician.

A-One: I want to work in music, not TV, and music I like.  Like an assistant disc jockey.

Mum: So why don't you Google 'DJ careers' to find out more about it?

A-One: No, I've done enough of this.

Mum: How might you get into the DJ industry if you don't find out more about it, or even if you would like it?  This is the work that it takes.

A-One: I am working at it.

Mum: Do you have 'DJ' set up for any of your job alerts?

A-One: No.  I'm not having this conversation! Stop going on about it!

Mum (sighing): Tomorrow we'll need to work on getting all your papers in order so that you can find your correspondence from Centrelink and to complete your tax return.

I went away, Googled 'DJ careers', and sent him a link which showed a little of what customers like in a DJ.  Later I asked him, do you think you'd like to do that, be like that?

A-One: Maybe.

Motivation and discipline

Once we got home, A-One had some jobs to do which he hadn't done last night, and I reminded him that I wanted to see his last Lumosity results (from Friday). Eventually he called me upstairs to see them.

He pointed out to me that he had achieved five PBs - I was pleased that he showed some interest in his results.  I told him again what great progress he had made - he's almost at 40th percentile overall, is already in the 40s (percentile) for Flexibility and almost the same for Attention.

Mum: You're doing so well, I think it's time to change your training priorities.

A-One: No. Nuh. No.

Mum: You need to work on your Problem Solving (which is still under 10th percentile).  You have done so well on all the others - up 60 percentiles on Speed since you started! You would do really well on Problem Solving if you just revised all your tables and number facts.  You used to know them, they would come back if you worked at them.  If you did that, I reckon you would zoom up on Problem Solving too, just like you have on all the others.

A-One: I know, but look, I will be doing a Problem Solving game today.  It's a Maths one though.

Mum: As I said ....  You know, I'm really looking forward to seeing what difference this all makes for your next job.

Is it making a difference in real life?

Last week A-One's dad asked him to do an outside job - pull down a vine off the fence.  It's a job he had done before, and it usually takes days of hassling to get him on to it.  However, last week he offered far less protest and actually had it done before his dad came home.  I didn't even remind him about doing it, and he did an excellent job.

This morning I asked him if he was ready to leave for Centrelink by 8:20am for an 8:45am appointment.  Recalling the last appointment, he said we could leave by 8:30am and be there on time.  When I think of all the times I try to get him to commit to a time and work back from there as to when to start getting ready! Seems that when it suits him, the working back from a time (time planning) may be all there?

I was reading a discussion on Friends of SharpBrains LinkedIn page this morning, which stressed the need for continued, disciplined effort for brain training to be effective.  That even parents find it difficult to maintain the focus for their children on brain training programs.  I also listened to a TED talk on motivation. How a manager takes notice of what people do can make all the difference to their willingness to stick with things (although I think any parent knows this too).  I know that if I left his brain training to A-One, it would never happen.  I just hope that my continued interest, encouragement and hassling - he sees me recording all his results in 'the red folder' - is sufficient to ensure he is doing enough for it to make a difference.

A Centrelink appointment ... for?

We visited Centrelink this morning to attend an appointment for people on disability pensions who are looking for less than a specified number of hours of work per week. At our last meeting with A-One's Disability Employment Services provider, A-One's target hours per week were recorded as 8-16.  He had received a phone call from Centrelink inviting him to attend an appointment to talk about how he's going; to make sure he's not falling through society's cracks; that he is making progress with his employment goals, and has some engagement with community.

A-One: I'm nervous about this appointment.  I hope they don't ask me any questions I'm uncomfortable with.

Mum: What type of questions might they be?

A-One: If they ask me what else I'm doing besides looking at emails for work.

Mum: How would you answer?

A-One: That I watch some TV, do some reading, play some X-Box games, play computer games.

From where I stand, he seemed to have reversed the order, but I let it pass. Instead I posed some questions he might get.

Mum: What about friends?

A-One: Yes, I talk to them.

Mum: How do you talk to them - call? email? Facebook?

A-One: Facebook.

Mum: When was the last time you talked to them?

A-One: It's been a little while.

Mum: How long is 'a little while'?  Before? After? Christmas?

A-One: After Christmas was the last time.

He observed the security people in the Centrelink office so we went on to discuss why they might be there, when his name was called.

The Centrelink officers were friendly, but the process for the interview seemed to be very perfunctory.  We were advised that this was a new initiative of the federal government, and that his participation was entirely voluntary; that they had a set list of questions to ask and that the outcome would be a plan which he would sign.  The timeframe for any plan could be long term, for example five years.

My impressions?  Accepting A-One's responses at face value with no insightful questioning as to what might really constitute barriers to employment.  In response to A-One's stated goal of becoming a sound engineer or assistant DJ, there was some brief discussion about a TAFE course, but they simply noted that A-One was not doing it. They stressed to A-One that he share his employment goals with his Disability Employment Services (DES) provider.  They gave A-One a glossy package containing a pen, a notebook, and a copy of his signed 'plan' which stated his employment goal which, as he said, is already on his resume anyway. I came away with the feeling that they could tick off another box in 'assisting' people; it seemed more like a bureaucratic overhead.

Our discussion on the way home seemed to provide more insight that I thought such an interview might have drawn out.

A-One: I don't  mind doing study that is hands on, like making sure that everything is connected properly, but I'd struggle if I had to do assignments that required writing.  Even games testing would be good, but I'd have difficulty writing reports of the tests.  There are problems with WOW, but I don't know if the WOW developers would think they are problems.

Mum: There's a website where you can submit problems with WOW - perhaps you could start small by practising reporting bugs there?

A-One: You see, in WOW my character is at level 90 and I've been trying to get a recipe for food for health - you can restore the health of your character with food.  It's at level 60, which should be really easy for me, but I've been trying for years to get it and still haven't - that's very frustrating. You see I like to collect full sets of things, and ...

... and so on for the rest of our trip home.

Easter holidays

As Easter approached, we told A-One about our plans for family camping, as we often do at Easter.  A-One was not enthusiastic.

A-One: Do I have to go?

Mum: Yes. We can't leave you here for 6 days on your own.  You can't even drive to the supermarket for food.

A-One: Will there be anyone else there?

Mum: Yes.  Some of your cousins will be there.

He likes the company of his cousins but he came along grudgingly nevertheless, leaving his packing until late as usual.  He has two tents of his own, but he elected to sleep in the second room of our two-room family tent because there was less setup.

We are used to his 'help' at setting up camp. It involves a lot of looking on his part, and a lot of doing on ours.

Regardless, we enjoyed ourselves, and tried to allocate washing/wiping up to A-One only when timing wasn't important.

Once A-One's cousins had left he kept asking if we could leave a day early. We didn't. However, when it came to packing up, his level of helpfulness was a notch up on his usual standard.

More remarkable was his ready willingness to come with us the next weekend to stay in a high rise apartment down the coast.  No protests about going.  I told him there'd be free internet (enough for emails, but probably not enough for games), but he decided not to take his laptop! When we arrived, he wanted photos of him with other well known high rises in the background, and was keen to go for a walk to check out the surrounds.  This level of enthusiasm is rare.

We ate in the mall on Saturday night, watching the passing crowds, many of whom were dressed up for clubbing.

A-One: There's a real vibe here and I like it. I think I should have worn something better.  I'd really like to stay out - if only I had some friends to go out with.

Perhaps his new Disability Employment Service can help him gain the skills to be more engaged socially.  However, he will need to decide (and follow through) on how much time he plays WOW.  Today, he told us: 'I've just got a mount that I've been trying to get for ages!!!!  I've killed the boss 46 times - it feels like much more than that - but I've finally got the golden Phoenix!  I'm so happy, I'm just shaking!!!'

Pension cancelled!

A-One forgot to report his (zero) income to Centrelink for a couple of reporting periods, and received a letter advising him that his pension had been cancelled. I was aghast.

 

 

 

Earlier I had coached him to set up an alert on his iPod to remind him to report. When he lost his job and his reporting became zero, he had been managing the reporting OK. Despite my suggestion that he should advise Centrelink he no longer had a job (so that he didn't have to report any more), he hadn't taken me up on assisting him with the phone call. 

 

The letter prompted him to action.  Before he made the call to Centrelink, we practised what he could say. He pulled out the making phone calls 'recipe' I had written out for him some time ago.  He handled the call very well, which resulted in the reactivation of his pension (and no longer needing to report his income.)  Phew!

Real life changes?

So after a good three months actual time brain training (longer in elapsed time), have there been any changes in real life for A-One?

I'm aware that results of non-blind clinical studies can be biased by the 'want it to happen' factor, and that may apply to me too.  That said, here are my observations of some behaviours over the last month that I haven't noticed before:

With his proposed change of Employment Service Provider, A-One needed to go through Centrelink hoops again, one of which was his Employment Service Assessment interview (previously called Job Capability Assessment or JCA).  I attended with him.  I noted how he reported the challenging feedback that he had received from previous jobs i.e. his variable productivity.  I realise that expressing this played to his verbal communication strength, however he articulated it very well. Also, when I was deciding out loud on a route home he suggested one route over an alternative and was able to back up his suggestion with a reasoned argument.  There's more 'connecting' in two-way conversations than when he was little; conversations were always like two games of ping-pong - he'd always say what he wanted to say regardless of whatever we said to him.

Of late, A-One has participated in more family conversations or discussions:

• We were watching the news when he ventured an opinion about a news item.  As far as I can recall, that's a first.  The family continued discussing his opinion, including him.
• 'You're a bit of a nerd' he told his sister amiably one day.  It struck me that he had never made such a comment before.
• One day when I was urging him to do his brain training he said, 'You know Mum, I'm just not into it as you are.'  While he still frequently invokes the 'I'm not doing it' or 'I will do it' (at some deliberately undefined time), this response was a new one.
• 'I play WOW because I enjoy it.' While that may seem obvious, he was responding to his sister's question about why he spends so much time at it.  I think the difference was that his tone was less defensive than other times, instead merely a statement about his position.

Or perhaps he is simply growing in confidence and maturity ...

Working Memory

I can hardly believe it's been over a month since I blogged about my son A-One's brain training. He has continued doing some, but it hasn't been daily, more like every 4 or 5 days.  His overall score has moved up 5 percentiles during that time:

• His Speed is now 72nd percentile, with over half of the games having included information processing
• He cracked 50th percentile for Memory, although only a couple included working memory exercises
• He moved up 5 percentiles in Attention, but slipped back a couple of percentiles over the last few games played
• He has moved up almost 12 percentiles in Flexibility
• Problem Solving stays doggedly around 8-9th percentile, although he has been served up very few problem solving games over the last month

Once A-One had cracked the 50th percentile for Memory, I wanted to include additional working memory games e.g. Dual NBack download because it is a well-known clinically proven peer reviewed exercise for working memory, and is also free.  Roughly speaking, working memory is where you do (manipulate) things in your head e.g. reciting a known telephone number backwards.  A-One has an impairment in this area, and it's a pretty key one for learning.

I chose the downloadable version (there is an online version at Dual NBack online) so that any lack of access to internet would not be an issue.  Although he also does a version of that game in his Lumosity training, he doesn't get working memory games every time he plays, and I'd like to intensify his training in this area.  Cogmed is also a commercially available peer reviewed program for working memory which I had originally thought I'd book him in for, but I wanted to gauge his commitment level before committing funds.

The downloadable version does not have as simple look and feel as the online version, however it is more configurable, and can be set to start more simply than the online version.  Basically, the player has to remember two things (dual) and hit nominated keys when there have been matches from N times ago.  To get him started, I initially set it up for A-One to remember only the previous try (1 Back) instead of the default which is two tries ago (2 Back).  I tried it myself first so that I could explain how to play (for me, the explanation with the game took a few reads through).  He downloaded it happily enough (around 20 March), clearly indicating that he didn't need my help downloading it.

However, when it came to playing it:

A-One: This game is too hard - you have to remember two things.

Mum: Yes, it's difficult at first, but once you get used to it, you'll get the hang of it.

A-One: I'm not doing it.

And he hasn't since ...