That sounds like a plan

Today was a good day.

After I woke A-One this morning I asked him about his plan for the day, to which he answered 'I don't know.'

Mum: Did you do your additional information processing and working memory games yesterday?

A-One: Yes.

Mum: Fabulous!

I gave him a gee up about getting on to today's games, then they'd be out of the way, and left it at that. 

Later on in the day, he came downstairs and told me there were three things he had to do today and proceeded to enumerate them.

A-One: I'll eat first, then I'll fix the DVDs folder, then Lumosity, then I'll report my income for Centrelink (which I should have done yesterday).

Mum: That sounds like a plan - well done!

This afternoon I asked him how it all went.

A-One: I've done them all.

Mum: That's great. Really well done.

It gets better.

He's now in the 25.3rd percentile for his overall BPI. He was presented with both an information processing and a working memory game today (so no extra ones to do), but it was his problem solving percentile which had shot up!  He's now in the 8.5th percentile! When he first started he was somewhere between <1st and 2.5th. We checked out which games he had been served: both a quantitative reasoning and a word sort game.  He performed significantly better with the word game, but even the maths one had risen slightly too.

I could see that he was pleased at my reaction to his problem solving result. Howzat!

Both a tortoise and a hare

It's been over a week and A-One has had no calls about going back to work. Despite our urging to make contact to show his interest, he has heard nothing and has not been willing to make the phone call.

So I did.

He has been registered with a disability employment service for several years, and they found him his current job.  I spoke to his consultant.  I had wanted to call her anyway to let her know about A-One's brain training work, and to let her know how it has been going.  I also mentioned the Arrowsmith program and how I have joined an advocacy group to bring the program to Australia.  It was not one with which she was familiar.

Of most interest to me was the feedback she gave about A-One's work.  She found that A-One worked really well on some days, but was very slow on others.  He worked best when there was someone there all the time encouraging him with 'You can do it A-One'.  When there wasn't anyone there he was very easily distracted, or would do the same thing over several times when it wasn't really required.  His work buddy was able to complete the whole job sooner on his own than when they worked together and was not returning to the job. So A-One's job is on hold until they can find someone else to be his work buddy.

That certainly consolidated for me the consistency of our experience of A-One:

• at home
• his first job after he left school (Life since school)
• this job (It's all in the timing)

I spoke with A-One about it.

A-One: Why did you phone up? That's not your business!

Mum: Because Dad and I wanted to know what was going on.  We wanted some idea as to when you might be going back to work.

Mum: We're hearing again that even though you know the job very well, it's the inconsistency in your pace that is difficult for employers.  You often tell me 'I know' when I remind you about doing things, and it's clear to me that you can readily learn a job, but you need help in doing it at a consistent pace.

A-One: My work buddy probably got sick of me.

Mum: I don't know anything about that.

A-One resumed playing WOW  as I was speaking to him.

Mum: Could you take your character to a safe place and pause the game while we're talking about this?

A-One: I can listen to you while I do this.  See I'm responding to you?

Mum: That's pretty amazing seeing your auditory processing is somewhat impaired ....

Mum: Remember your cooking plan which includes the times of when to do things (It's all in the timing)?  What if you do that for other jobs so that you can do them at a more consistent pace, and improve your work prospects?  Use the clock as your friend to check things off against the time on the plan. Remember how I tell you to take note of the time when you start and finish jobs? We've been trying to tell you this, but you haven't wanted to know.

A-One: I get it Mum.





Later on A-One came downstairs and asked me which additional games he should play today.

That's a first. 

I'm good with names

A-One's overall percentile after today's training was 24.5th - achieving a new high yet again at 808 BPI. His memory score was significantly further up from yesterday and his flexibility had just nudged higher than his previous highest before the break.

He was not served up any information processing or working memory games today. His memory game was about remembering faces. He usually does quite well with the cafe game where he has to remember both faces and orders, so it seems that remembering faces is quite a good strength for him.

He did it!

My son A-One did it! (she said proudly).  He played the extra game yesterday for information processing. My cup is full.

When I woke him this morning (even though I knew he'd been up until at least 3am), I gee'd him up to get onto his brain training first thing, and asked by-the-way about yesterday's extra work.

A-One: Yes, I did it.

Mum: Fantastic!  And how did you go?

A-One: OK I suppose.

Mum: Brilliant that you did it A-One.

He smiled, so I could see that he was pleased with the praise (unlike yesterday).

Later, when I was 'bragging' about him to his sister,

A-One: You don't have to tell everyone Mum.

Mum: You've heard about people who overcome obstacles - you could be one too you know. You could be an inspiration to others.

I was out again this morning, but he had finished today's training by the time I came home for lunch.  His overall BPI is now 763 at 21st percentile - the highest yet!  He wasn't served up a speed game today (so no information processing), but the memory game was on working memory again. He improved further, taking his memory to 32.1st percentile - another PB.  Other areas have been steady.

The online chart of his progress is showing a steep improvement since he resumed a couple of days ago.  When I mentioned that it looks like he's taking off, he seemed pleased - in a 'let's not go over the top here Mum' kind of way.

Mum: You didn't get an information processing game today, so that's what you'll need to add today.

A-One: It's my choice. I won't get worse if I don't do it.

Mum: How fast do you want to improve?  5 years? 6 months?

A-One: Well, not 5 years I suppose.

Mum: The more work you do, the faster you'll improve your prospects.  That'll be easier while you are still young.

I went back to my earlier notes on A-One's brain training.  He has improved over 500 BPI and 10 percentiles since he first started on 12 November 2012!  With a break of almost two months in between, that's really just a little more than a month of actual training.  We looked at it together and he seemed pleased with his progress.  I asked him to imagine getting to the 30th percentile ...

Best yet!

Whoohoo! Today A-One increased his BPI for memory (and it was working memory) by 113! (It wasn't before 10am, but at least it was before lunch.) And his overall BPI is the highest it's been, with his overall percentile at 19.6. He gained PBs for flexibility and problem solving which is now at 5.5th percentile.

Mum: Hey, that's fantastic - your score for memory!   And you're not only back at the level that you were, you're higher!

A-One, flatly: Yeh-Mum-it's-fantastic.

I noticed that his speed was still down, and that it wasn't an information processing exercise.  I told him ne needed to pick one of those and add it, so that he gets an information processing exercise in per day.  I needed to go out, and I haven't found out yet whether he added it.

I doubt it.

Speak to me of love ...

Another conversation this morning about making brain training a priority.

Mum: Get on to your brain training this morning so that I can write it up and then my day is clear for other things.

A-One: Can't I just tell you when I've done it?

Mum: I'm the busy one, and I need you to work in with me so that I can plan my day.

A-One: I don't have to do it to suit your convenience! You don't have the authority to tell me when I have to do it.  (Doesn't he have great verbal skills?)

Mum: Well, yes I do. It is a requirement of living in this house that you complete your brain training by 10am every day.  

A-One: You don't say things like that to your immediate family!  Maybe to others, but not to me, and I don't see you saying it to .. (A-One's sisters).

Mum: Your brain training is that important! Successful people decide what are the top 1-3 things to do every day, and don't let other things get in the way - they make time for the important things first!  I'm trying to show you successful life skills.  I've given up work so that I can work with you or find something to help you.  I have made this my top priority.  (I felt tears rising) it's because I love you A-One, not because I want to make your life difficult. I've researched this work, and you will have to give me the benefit of the doubt about its value.

A-One: Okay.

On reading this, those who subscribe to a self-directed learning philosophy may squirm. It's clear what my priorities are for A-One, what about his? They may ask, how is that respectful of him? Yet our experience of A-One is that he lacks initiative. He lacks the capacity to translate an abstract goal into real concrete steps, and from what I have read, I think this passivity is one of his cognitive impairments. Last year, the neuropsychologist told us to be directive in taking positive steps.  She commented that waiting for him wasn't working, was it?

In the end, we want him to know he is loved, and our drive (and frustration) comes from there.

 

His scores today were similar to yesterday; speed was down, but the others were OK. A couple of new games.

As we looked at his scores, I explained to A-One the importance of two types of games based on his previous capability assessments: information processing and working memory. We looked at the games available, noting those that exercised these capabilities. I told him that if the program doesn't serve up these games to him, he needs to add them in as 'extras' every day.

Time will tell whether I've got through to him for just today, or for the days ahead too.

New priorities for the new year?

A-One's laptop came back from repair on Tuesday (2 days ago), so he has been able to resume his online brain training yesterday and today. We're finally back into the swing of things after a long vacation period.

The most challenging aspects of the vacation period was when I needed A-One to do some jobs by a certain time, especially being ready to go away on holidays. I still haven't struck the magic formula for having him co-operate in that respect, which heightens the stress levels all round. Nevertheless, once we do get away, he is more willing to do as asked by those not from his immediate family.  So I'm thinking I need to more actively pursue brain training alternatives this year which involve people outside his immediate family, who may be more successful in having him give it higher priority.

It has been almost two months since he has logged on for anything. For a while he had access to another PC in the office, but his sister decided to reformat her external hard drive, and it seems she included its C: drive because it no longer boots up.  So A-One occupied his time mostly with X-Box and DVDs while eagerly awaiting his laptop repair.

Happily, when I went into his room yesterday, he was logging in to his Lumosity training (after some reminders).

A-One: Mum, see how the dot in the calendar appears in the middle of the week? Isn't it better to start next Monday so that the calendar shows dots for a full week of exercises?

Mum: No, it doesn't matter.  It's better that you resume your training as soon as possible.

I had to go out, and when I returned, he was happy to show me how he'd gone.  He was given all new games to do, so all were personal bests (PBs). He had dropped 43 in his overall Brain Performance Index (BPI) from 737 in December, mainly due to a drop in speed.  I wondered how long it would take him to recover his former scores.

His conversation however was all about a slight glitch he had encounted while playing World of Warcraft (WOW). He was keen to describe, at length, the glitch and his attempts to fix it including posting a question to a game master.  Today he received a reply, and spent many hours following the tips, which resulted in his now being unable to log on (hooray!).

Mum: How has your brain training gone today?

A-One: Fixing this is more important!

Mum: ... a repeat of a conversation we've had many times ... my patience is waning ...

I wish!

Nevertheless, by the time I came back to 'remind' him again, he had logged on.

Several hours later when I was free again to see how he went, he had almost recovered his former BPI score!  He had again gained PBs for all games, including the old 'cafe' game where he had to remember people's names from way back in December!  He was also keen to show me how to play the new games, so I was happy to see his willingness to play them again.

Lumosity has games specifically for working memory, so I've started encouraging him to add in some additional games each day, just for that.  Now I have to think about how I'll get him to do it ...