Thursday, September 12, 2013

Persuasion - one step at a time

A week or so ago I broached the subject of attending the Arrowsmith program with A-One.

A-One: Well I'm not going!

Mum: A-One, this program could really help you!  For example, if you wanted to do a course at TAFE, you could find it easier than when you were at school.  It could help you learn better.  You remember that you found writing difficult at school?  It could help you do that better.

A-One: I didn't find writing difficult.  It was what to write.

Mum: Yes, that's right.

A-One: Anyway, I'm not going!

Mum: This is very serious A-One.  When we're gone, what will you do? Where will you live? How will you get your groceries? Who will help you manage your insurances? Health cover? Tax returns? Your pension?  It's not right to those who love you, nor to the Australian public who fund your pension, if you don't take up an opportunity which may help you be able to do those things for yourself!  Surely you'll at least try it?

A-One: No, I'm not doing it!

Mum: This is so serious, we'll have to start thinking about making it a condition of you living in this house.

A-One: You can't do that!

Mum: You are 23 years of age and you need to be thinking about living more independently.

A-One: I'm not going anywhere!

Mum: What are you objecting to so much?

A-One: I don't need it.

Mum: And yet you don't have a job, nor a driver's licence, nor able to take on responsibilities that others your age are already doing.

A-One: That's not my fault! Employers should give me a job!  They should give me a chance!

Mum: Don't you want to give yourself the best chance?

A-One: Yes, but I'm not that bad. I don't need it.

Mum: That's right. You're quite capable of many things. But this program is for people who are already good at some things, but have some blockages in their brain that stop them from doing other things.

A-One: I'm not doing it.

Mum: A-One. Has it been your experience that people often get frustrated with you? That they lose patience with you? For all your life so far?

A-One: Yes.

Mum: Do you want it to be that way for the rest of your life?  Do you think we want it that way? There's a chance your life could be different in a way you don't yet know. Don't you think we'd want your life to be one where people no longer get impatient with you?

He started giggling.  Not because he found it funny. It was his emotive response.

A-One: Stop talking about it.  I'm not doing it.

Mum: Well, you've assessed that you don't need this program.  What about the people who are offering the program?  Don't you think they'd be able to tell whether you're a suitable candidate?  If we put in an expression of interest, that doesn't mean you'd automatically be doing the program.  They might decide that it wouldn't really help you, and you'd be right after all.  Couldn't we at least see what they say?

I can't quite recall if he said anything after that. It seemed to me he was still intransigent, so I thought I'd draw round one to a close.  I knew it would take some time for him to get used to the idea, even if just to agree to an expression of interest.

That evening, his father said to me simply, 'He's doing it.'  He went to A-One's room to talk it over with him.

After about 20 minutes, his father reported that A-One had agreed to the expression of interest.

The chorus (A-One's youngest sister) commented: Gee, I was expecting there to be shouting and tears over this tonight, but it was all very calm and controlled. Wow.




I'm not sure where the magic happened.

A-One may be right.  This program may not be the right one for him.  It's for people with average or above average intelligence, and in the past A-One's tests put him at low average - yet still in the average range.

At least we have a chance to find out now.



Thursday, August 29, 2013

A life lesson ...

In the last week A-One's WOW guild kicked him out.

He was very upset telling me about it.

A-One: They said I made them feel uncomfortable.  That I talked too much about what I was doing.  And now they've put me on 'Ignore'.

Mum: Are they the same ones who were planning the real life event next February? (which A-One's father and I had been very nervous about, with all the risks of meeting up with online 'friends').

A-One: Yes, and I was looking forward to that.

Mum: Did they mean you talked too much about what you were doing in the game or in real life?

A-One: I think they meant the game.  What should I do?  I want them to reconsider and give me another chance.

Mum: Well, it seems like they don't want to.  You'll probably have to move on to another guild, and remember to not talk as much about what you're doing.

A-One: They told me a bit about that a while ago, and I thought I'd stopped doing that.

Mum: OK. Well, it seems like it wasn't enough for them.  All that means is that you need to improve picking up on social signals from people.  And you can do that.  But it's much harder in an online game because you miss out on all the non-verbal communication.  Do you know what that is?

A-One: No.

Mum: The words that people use are just a very small part of communicating.  Their eyes, tone of voice, posture - all these things tell you something too - in fact much more than their words.  For example, you might be talking to someone and their eyes might be looking away all the time.  That's a signal for you to stop talking, and perhaps ask them a question about themselves, or to let them talk about something.

A-One: Hold on.  Back track.  What were you just saying?

I repeated it, trying to couch it as a social 'rule' for A-One to learn, when he said:

A-One: I got a message from (a school friend) about that the other day.

He proceeded to show me his Facebook message.  A female friend had given him some tips on how to have (and not have) social conversations.  'Stand about one or two metres (sic) away from people.' 'I might say ...  Then you might say ....  Then I might say ....' and so on. 'You just don't keep talking about the same thing all the time'.  The tone of her message was genuinely wanting to help him, and I was touched by her kindness in going to the trouble of giving such direct feedback in as friendly a way as she could.

Mum: She's trying to help you A-One.  It might hurt to hear it, but you really can learn to do this better. We could practise it here.  She's been a good friend to you, trying to help you like this.

A-One: Do you know the worst part of the guild was that they had a meeting about me, and wouldn't let me be there. What can I do to make them take me back?

Mum: I don't know them, so I can't really advise on what approach might work, or even whether they'd be interested in hearing from you. 

A-One showed me the messages on the game, and they had clearly reached the end of their patience with him, yet had tried to be not too nasty in telling him.

Mum: Had you ever mentioned anything to them about a disability?

A-One: Well, yes, I had mentioned that a little.  And one of the members has a child with a speech problem, so I thought they understood.  It takes a while to find a good guild, and the people in this one seemed to be family oriented.

Mum:  Well, I really don't know if it's wise to try to talk to them again.  When a break-down in a relationship has got this far, if you really want to repair it, the very first thing you have to do is acknowledge what they are saying.  You certainly can't ask for anything first up.  And you might have to wait a while before you even say anything ... to give them time to get over the heat of it first.  Because it sure sounds like you've done your dash with them.

A-One: So what could I say?

Mum: Well, if you say anything at all, it has to be short, and simple, and gracious.

Despite my reservations about trying to repair a relationship with a group whom he has never met in real life!, because it's the first time he's really wanted some advice, I thought it presented a learning opportunity which he could apply in real life.

In the end, we spent a couple of hours talking through it.  We worked on some words which he wrote down on his iPod to copy it online later.  He later sent the message, 'I hear what you are saying.  I get it - I have to stop talking about what I do all the time (in game and IRL).  As you know I have a developmental disability and I want to improve myself.  Thank you for your feedback and for the good times I had in the guild.'

A-One: Of course, I think they really should give me a second chance! The worst part is that I won't even know if they got the message.

Mum: Well, if you don't hear anything back, you'll just have to move on, and remember how you can do things differently in future.  This is a really good time to add other groups to your life - in real life.  Join up for Tae Kwon Do or Karate, or is there some other sport you'd like to do?

A-One: Yes, I might like to do that.

He didn't hear back.







Tuesday, August 20, 2013

Turbo in waiting?

A-One's fortnightly appointment with his employment consultant falls due tomorrow, and he is meant to have had at least 8 employer contacts since the last meeting.  That was his 'homework' for the last meeting, and the one before that too, but the dog ate it both times.

I reminded him yesterday that we'd better get down to the shopping centre today if he is not to be embarrassed about not having done his homework.

Mum: When do you want to get started tomorrow?

A-One: Early.

Mum: What time is 'early'?

A-One: I don't know. Just early in the morning.

Mum: Well, early in the morning could mean 5am.

A-One: Not that early.

Around 10am, after I had finished my exercise, I woke him.  I calculated that he might be ready by the time I'd finished my shower.

Mum: Time to wake up.  We going to the shopping centre today?

A-One: What for? ... Oh, yeh.

Mum: So get up.  Have breakfast.  Do you need to shower?  Also, empty the dishwasher before we go too.  Get cracking.  We're not going down there at 4pm because that will not be enough time.  And if you leave it until lunch time, the people you want to see may be on lunch.  Come on.  Time to get up and at 'em.

We have had a few exchanges in the intervening hours in response to my
'A-One, what's happening?'s:

A-One: I've only just finished my breakfast ... What should I wear? .... I'm just getting dressed .... I need to check something in my resume ....  I'm just getting something ....

It's now past 2pm.  It appears not a creature is stirring ... I'd better go see what's happening again.


Thursday, August 8, 2013

Status Check

A-One hasn't done much brain training over the last month - just one day in the last four weeks.  His last score on Lumosity was 45th percentile, comprising the following sub-percentiles:
  • Speed: 72.4
  • Memory: 60.1
  • Attention: 46.8
  • Flexibility: 53.9
  • Problem Solving: 9.1
All of the above are well within the average range, except Problem Solving.  I reckon his overall BPI would be higher than 45th percentile if he learnt his number facts.

So, has anything changed for A-One from his brain training?

When he met with his employment consultant yesterday discussing kitchen hand work, I noticed that he worked out how many years he'd been cleaning up the kitchen at home when I said he'd been rostered on that job since he was at least 8 years old.  Next week he turns 23.  He casually slipped into his conversation 'So, I've been doing that for 15 years.'  No pause, no counting on fingers.

I've also been noticing that his conversations as he plays WOW with his online friends are quite coherent and not all one-way.  Quite different from just a few years ago when he'd get on to a topic and keep talking regardless of signals that it was time to let someone else speak, or to inquire after them.  It all sounds very regular to me.

He now needs to build his confidence, and become motivated to get out of his comfort zone at home.

The best laid plans ...


At his meeting with his employment consultant yesterday, A-One reported on the job ads he had found interesting over the last fortnight, even if just a little.

A-One: There was one that required some packaging of orders, with some reception and admin work.  But they wanted someone who could 'work under pressure', and 'answer phone calls at reception'.

Consultant: Let me stop you right there.  How do you know if your idea of pressure is the same as their idea of pressure? You don't really know until you try.  When you think maybe you can't do it, I want you to put those thoughts away, and give it a go.  It's a good to be in the habit of applying, and good practice if you get an interview.  And when they say they want experience? Remember, you say you are willing to learn.

A-One: Yes.

Consultant: As you say, you might not find cleaning jobs really interesting, but you need to start somewhere, and from there you can work on to other jobs that you like better.

Mum: Yes, over the last fortnight, I heard A-One say for the first time ever 'working my way up'!

Consultant: Yes, that's how it can work. Will you get to your 8 employer contacts for our next meeting?

A-One: Yes, I'll do that.

On the way home, the plan had been to go via the shopping centre so that A-One could drop in his resume at his targeted shops (electronic gaming), as well as be on the look out for those looking for staff.

Mum: We'll just stop by home first so that you can swap the thongs for some shoes.

A-One: So, we're going home first now?  ... I really need a haircut too.

Mum: We could do that right now if you like.

A-One: OK.   Now, (consulting his iPod notes) how do I pay for this with my card again? Do I press credit or savings?

The haircut and payment duly executed, we headed for the 'quick' stop at home. He headed for the toilet.

Thirty minutes later:

Mum: A-One, how long will you be?  We'll run out of time!

A-One: We won't do it this afternoon.

After he emerged, he sat at his computer:

Mum: So when do you want to go down to the shopping centre?

A-One: I don't know.

Mum: If you need my help to get there, or to help you practice what to say before you talk to employers, you need to give me a time.  But if you go there on the bus, or walk, then it's up to you.

A-One: I don't know!  I need to think about it.

Mum: OK. How long do you think you'll need to think about it?

A-One: I don't know!

I moved on to something else.  Another day, another try ...



Job Hunting?

A-One and I had an appointment with his employment consultant again yesterday.  He had been given 'homework' - to have 8 employer contacts (submitted his resume) in the preceding fortnight.

Since the last appointment I had been reminding him about looking up the job sites in the way his consultant had shown him, or heading down to the local shopping centre to hand in his resume.  Despite his insistence to the contrary, as far as I could tell not much had been happening because he usually asks me questions when he's perusing jobs.

I woke him at 11:30am for a 1pm appointment.  At 12:30pm, he stepped dressed from the shower:

A-One: We should go down to the shopping centre before our meeting.

Mum: We don't have time for that now.  We have to leave here by 12:45pm at the latest to make it to the appointment by 1pm.

A-One: Yes, we'll have time.  I can't really go with nothing to show.

Mum: I'm glad to see you realise your obligations, but it needs more time than we have right now.  We simply won't make it by 1pm if we go down to the shopping centre now.

A-One: How do you know that? All I have to do is eat my breakfast and clean my teeth and then we can go to the shopping centre.

I left it as a rhetorical question until he had finished his food and cleaned his teeth.  By that time it was 1:45pm.

Mum: Are you ready to go now?

A-One: Yes.

Mum: You realise we're only just going to make it to the meeting?

A-One: Okay Mum.  You don't have to keep going on about it.

I went out to the car with A-One following me. He then rushed upstairs saying he'd forgotten something.  By the time we were backing out the driveway, it was 4 minutes to 1pm.

A-One: What will I say?

Mum: What do you think you might say?

A-One: I don't know.  That's why I'm asking you.

Mum: You'll have to call (consultant) to let him know we will be late.  (This happens for just about every meeting.)

A-One (on his mobile): Just calling to let you know we'll be a bit late.  We're on our way ... No, I didn't get around to that ... yes, we can talk about it soon.

A-One (off the phone): So, what should I say?

Mum: Well, what have you done in the last fortnight?

A-One: I've been looking, but I don't see jobs I'm interested in or think I could do.  (Pause)  ... I could tell him what I've done. And we could go down to the shopping centre on the way home after the meeting.  So I can tell him what I plan to do too.

Mum: Sounds good to me.  Still, it's better to be able to tell what you've done than what you plan to do.

Arrowsmith in Brisbane!


The very good news is that the Shaping Brains Project of The Benevolent Society has now signed up for the Arrowsmith program at the Acacia Ridge Early Years Centre. The program will be for children - but for adults too!  Sheryl Batchelor emailed me with her exciting news a few days before she went to Toronto for her training.  She will be starting the candidate selection process when she comes back.






I'm sooo hoping that A-One will be a suitable candidate.

I chose my time to tell him about the program coming to Brisbane, because he hadn't shown any enthusiasm for it when I've raised it with him before.

Mum: A-One, you remember the Arrowsmith program? Well, it's now going to be available in Brisbane.

A-One: Well, I won't be going.

Mum: I think it could help change your life.  Even though we don't know that for absolute certainty, I still think it's the best thing that I've seen that could help you.  You could start thinking about a sound engineer course at TAFE or even something else if you wanted to.  The program could help you to learn and to write more easily - to be able to handle a course so much better than when you were at school.

A-One: It's not necessary.

Sisters: So what are you going to do if you don't do this?

Mum ... and Dad: You know the people who usually do the course are just normal, intelligent people. They just have some blockages in their otherwise perfectly fine brain, and they want to work to remove those blockages so that they can make the best use of the already good parts of their brain.

Grandparents:  A-One, this is very exciting for you.  You'd be at the cutting edge of a new frontier!

I think he'll come round.

Monday, July 29, 2013

Testing

A-One and I have finally completed his practice and baseline tests using CogStateTM.  For him to have had sufficient sleep it usually means he's free in the afternoons, but I'm not always free then.  In my attempts to co-ordinate our schedules I'd occasionally hear faint mumblings of ... 'not important' ... but, in the end, he submitted relatively graciously.

To administer the tests I was required to read the instructions while they were also presented to him on the screen.  For the practice tests, he usually read ahead and pressed on without waiting for me to finish the instructions.  Except the working memory tests - he read and re-read them before proceeding.

For the baseline tests, because they are timed and should be done without significant breaks, I asked him if he needed a glass of water or to use the toilet before we started.  He decided he did.

An hour later (sigh) we got started.

Again I read the preparatory instructions, reminding him that the tests were the same as the practice tests, just different in the specifics so that they are still 'fresh'.

Mum: Are you ready to start?

A-One: Not yet.  I'll let you know.

A minute or so passed.

Mum: Are you ready yet?

A-One: No.  I'll let you know when I am.

A minute or so passed.

Mum: How about now?

A-One: No. Not yet.

Mum: Are you composing yourself, getting your mind ready for this?

A-One: Yes.

The first baseline test was to remember a shopping list.  As I started to read out the items, he burst out, 'Aren't these meant to be the same words as before?'  So we used up some seconds as I explained that the test is the same, but the words are different.  That's what the 'composing' time had been about - trying to remember the words from the practice test!

For most of the tests again, he pressed on without waiting for me to finish reading the instructions, except for the more challenging of the working memory tests.  We completed all the tests in about an hour and fifteen minutes. My observation, supported by the test results, showed that his working memory is quite good. When tests required that he 'work out' a rule or find a path in a maze, he performed better than when he had to remember many things short term.  But for anything that had made it into his memory, his delayed recall was then good.  This is consistent with our experience of him - it might take a while for something to get into his brain, but once it's there, it's there forever!  So it sounds to me like he would benefit from practising learning things off by heart - not so much to know many more things, but to practice the learning technique required to remember things.

Mum: Do you want to see your test results?

A-One: Nah.

Pondering the good working memory results, and recalling that his previous neuro-psyche tests indicated a weak working memory, I asked him if he was willing to do a little exercise that would take only a minute (a working memory test).

Mum: I'll give you five numbers and I want you to repeat them back to me - backwards.

A-One: OK.

Mum: 7    3     9     5     8

A-One gazed down with a look of concentration on his face.  After about 15 seconds he looked at me and giggled.  He looked down again for about another 10 seconds.  Looked up, giggling again.

Then, tumbling the numbers out in quick succession:

A-One: 85937!







Friday, July 5, 2013

Not so enthusiastic

As excited as I have been about using CogStateTM to independently baseline A-Ones's cognitive functioning, and getting ready to try him out with C8 - Kids Cognitive Cross Training, I don't exactly have an enthusiastic partner in my venture.

Last night A-One went to bed early.  His sleeping patterns have become more erratic lately because he's been playing WOW on and off both day and night. However, after last night I thought 'You beaudy!  He's had a really good night's sleep.  His brain will be fresh. What a golden opportunity to begin the CogStateTM practice tests!'  I had been 'warming' him up to them over the last couple of days. Waking him up mid-morning:

Mum: Hi A-One. Time to get up. After such a good night's sleep, let's get started with your round of practice tests today.  How about you get up, eat, have a shower (it's been several days), and we can get started.

A-One: OK, I'll get up, but we'll see about the practice tests.

Later on as he was having breakfast ...

Mum: When will we get started? This afternoon sometime?

A-One: No! I'm not doing it today!

Mum: A-One, this is a golden opportunity because you had such a good night's sleep! Your brain will be on fire!

A-One: I'm not doing it today! 

Mum: The scientists have proven that you need adequate sleep, nutrition, physical exercise, as well as mental exercise for your brain to be healthy, so it's important that you've had adequate sleep to do the tests.

A-One: How do they know that? I'll prove that I can be fine without even 5 hours sleep!

Mum: Do you see that this brain training work is about helping you be able to have a job, and not just a job, but a good job? What will you do instead today?

A-One: Other things.

Mum: Do you think your WOW friends would be happy for you to spend some time away from them, improving things for yourself?

A-One: Yes.   

Mum: Well, can we do it tomorrow?

A-One: Yes.

Mum: What time?

A-One: I don't know!

Mum: How about 10am?

A-One: OK.

Mum: It may take about 3 hours all up.

A-One: Three hours! How come?

Mum: The practice will take about an hour or more, so that you get used to what you have to do.  Then we do the real baseline test, which will take just as long.

A-One: No, we're doing only the first part.

Mum: So when will we do the second part?

A-One: The next day, Sunday.

Mum: I can't do it Sunday because Dad and I have something on Sunday morning.

A-One: Well, whenever is the next time!

Mum: You do realise, don't you, that improving things for yourself can start right now?



So instead today, I'm blogging ... and he's WOW'ing.

Getting ready for a change ...

In the last couple of days I've sent off a few emails to others on the advocacy list for Arrowsmith, as well to a couple of educational institutions.  I've also been keeping up with the latest news from SharpBrains, and came across a reference to a free cognitive test called Brain Baseline for iPads and iPhones.  I duly went looking for it but it's only in the US Apple store, not the Australian one.  So I wrote off to them too asking when it would be available in the Australian store.

In the meanwhile I've tested myself out on the CogStateTM practice tests and think I have the hang of them now.  I've uploaded my practice results and am now working out whether the test report is useful to me, or simply to track A-One's scores in a spreadsheet myself. I'm very keen to get started with him as he seems to be losing interest in Lumosity, and I think it's time for a change. So I want to baseline him using CogStateTM, then try something else, giving Lumosity a rest for a while.

I'm very impressed with C8-Kids Cognition Cross Training, another suite of brain training exercises I came across via SharpBrains.  This one's from Yale University and has been used to treat ADHD. I like very much that a few simple games progressively incorporate training for additional cognitive functions, and progressive comprehensive reports on a student's cognitive profile are also available i.e. it combines both training and assessment.  The program also combines mental and physical training, so it's really the whole package! The program is geared to 5-10 year olds, but the interface is not too 'babyish' and adults can benefit from it too. The downside, and this is noted on their website, is that for adults any comparative assessments draw on a much smaller population, so I'm not sure how useful they'll be.

The C8 program requires that the student do 3 - 5 sessions a week ranging from 25 - 40 mins each, generally over a 4 month period.

I recall when I spoke to Sheryl Batchelor that she wondered why the Arrowsmith program needs 3-4 years when other programs show improvements over 3 months or so. I also have some niggling concerns whether A-One would qualify for the Arrowsmith program which requires students to have average or above average intelligence.  A-One's IQ is just below the average range, although when he was younger he was in the average range. Given the C8 program is used for ADHD, and A-One had been on medication for ADD when he was younger, this program might even be more suitable for him than Arrowsmith?

So, I think C8's worth a try.  It seems to match A-One's cognitive impairments, and compares in price to Lumosity.

Saturday, June 22, 2013

Arrowsmith advocacy

Last week, Debbie Gilmore, the Arrowsmith program's Australian representative, distributed the email addresses of people wishing to form an advocacy group to bring an adult Arrowsmith program to Queensland.

I'm keen to work with others to see how we can progress this. To that end I've emailed the group, as has one other in the group.


The policy of the Arrowsmith organisation is to not make public the discussions they have with any educational institutions considering the program until they have formally committed to the program and/or are happy to have that made public.  Advocates are not bound by that policy because they do not represent the Arrowsmith organisation.  However, I see the prudence in adopting the same position, so in this blog I'll write only in general terms about such advocacy.

The exciting news is that two more Australian schools have now agreed to offer the program:
The Arrowsmith website lists both Participating Schools and Prospective Schools.

CogState

An article on SharpBrains referred to using a battery of online cognitive tests developed by CogStateTM, an Australian company based in Melbourne, listed in the top five in SharpBrains' Market Report.

When I had previously looked at CogStateTM's website I had noted that their target markets were primarily for testing cognitive capacities in the aging (Alzheimer's) and sports (concussions), clinical trials for pharmaceuticals, as well as use by academic researchers. I hadn't pursued it at the time because I hadn't thought that the work I was doing with A-One fitted any of those categories.

However, following on from my thinking in The Challenge blog, I wrote to CogStateTM several weeks back making an enquiry about the use of their tests. I was looking for an economical way to independently assess cognitive progress using Lumosity, or CogniFit, or any other online brain training.

Much to my excitement, CogStateTM has offered me the use of their Research battery of tests for 12 months!  This will enable me to take an independent baseline of A-One's cognitive capacities now, and to periodically check how he's going as he continues his training. I'm hoping that it will also help me better target the training that A-One requires.

I checked with A-One whether he was willing to undertake the tests.

A-One: How long will they take?

Mum: Each test takes between a few to several minutes, and there are about a dozen tests. Doing the tests would take perhaps an hour, but the total time would probably be longer than that as you would need to learn what each test entails.

A-One: OK.

So far, so good. No resistance.

I downloaded the software yesterday.  The software comes with a research manual which I have been reading and I'm now training myself in how to administer the tests.

I'm also putting on my thinking cap about how to gather others similar to A-One so that he has some fellow travellers wishing to improve their cognitive capacities. CogStateTM has told me that I am free to use the tests for such a group.

I hope I can keep A-One as excited about this as I am!

Mind Up

A few weeks ago I attended a SPELD seminar presented by Sheryl Batchelor, the Program Director of the Shaping Brains Project funded by The Benevolent Society

I had previously not considered SPELD for A-One because many of its clients have dyslexia, and that is one area where A-One does not have a problem.  However, I had spoken to Sheryl late last year before embarking on A-One's brain training program, when she had advised me to be careful to use only evidenced based programs, and I was keen to meet her in person.

The seminar was about the Mind Up program, developed by the Goldie Hawn Foundation, in response to the number of children suiciding after 9/11.  The program helps children manage their self-regulation. Sheryl  first came across the program when she visited the Arrowsmith school in Canada about 6 months ago.  Mind Up is incorporated into the Arrowsmith program to help students manage the frustration they may feel when trying to maintain the sustained effortful attention to brain exercises. A lack of ability to self regulate can often be a student's first learning disability.

After seeing the program first-hand, Sheryl is keen to bring the Arrowsmith program to Brisbane for primary children and adults - to enable a family approach if that's what's required. After speaking with Sheryl after her presentation I emailed her to ask how I can also help bring the Arrowsmith program to Brisbane.

Friday, June 21, 2013

Under his own steam

Over the last month I have not been overseeing A-One's brain training too closely.  Under his own steam he has averaged training 3 times a week, which I'm very pleased about. 



At 53.6th percentile, his Flexibility has now finally passed the 50th percentile which is great news too! 

His Problem Solving is the only area that still lags under 10th percentile.

Over the last month we have been learning more about his WOW friends because he talks to them frequently, using his headphones and microphone. When playing, he sits in our family room so that he can use the internet cable instead of our unreliable wireless - we can't help overhearing his end of the conversations.  His sitting in our family area helps to include his online life with ours.

Friday, May 24, 2013

The Challenge

A few days ago I was reading a SharpBrains article about whether brain training really works, and read with interest my own burning question: 'how to max­i­mize the like­li­hood of trans­fer from train­ing to daily life.'

One of the conditions is that it must target a bottleneck. 'For instance, if you need to train your exec­u­tive func­tions but use a pro­gram designed to enhance speed of pro­cess­ing, you may well con­clude that this pro­gram does not “work.” But this pro­gram may work for some­body whose bot­tle­neck is speed of pro­cess­ing ...'

Bingo.
This is the area where I have been looking lately for some professional assistance.  Where is the user's guide to online brain training, so that someone can pick the right brain training exercise for their specific area of impairment?  Even the jargon for describing cognitive capacities seems to vary between sites, or is too general, so it's not always clear which exercises match A-One's specific deficits.


To this end, I have contacted some organisations to raise the possibility of combining professional expertise with online brain training, not for general brain fitness but specifically to improve cognitive deficits, just as I am trying to do with A-One.

For example, the co-ordinator of a 'brain gym' for brain injured soldiers at Walter Reed Military Hospital in the US presented at SharpBrain's Virtual Summit last year. She described how they use readily available brain exercises based on peer reviewed neuroscience, delivered via various media - online, mobile device apps, Nintendo etc - combined with standardised neuropsych evaluations to help soldiers rehabilitate their cognitive capacities after an injury, so that it is evidence based.

It seems to me that A-One could benefit from working with others seeking to improve capacity in their areas of cognitive deficit, where each person's brain exercises are targeted to their individual bottlenecks.  I think he would benefit from the social aspects of meeting with others, as well as increased motivation to keep working at it.

I keep coming back to the initial assessment phase of the Arrowsmith program and the classroom environment for delivery, and why that has been so successful. Could there be something similar for readily available, and inexpensive, online brain training?



So I'm running a few parallel paths of activity at the moment:
  • I'm contacting support organisations for people with learning disabilities or developmental or neurological deficits, with a view to joining with other parents and practitioners who have an interest in brain training to see what we could get happening for group training, especially for adults with average or above average intelligence with cognitive deficits.
  • I've contacted TAFE to discuss what would be needed for TAFE to deliver the Arrowsmith program
  • I have been raising awareness of the educational implications of developments in neuroscience, and the Arrowsmith program in particular.  For example, Coursera have recently announced their Continuing Professional Development program for Teachers which includes a course called The Brain-Targeted Teaching® Model for 21st Century Schools from Dr. Mariale Hardiman at John Hopkins University. I've alerted the Learning Support teacher at my daughter's school to this, and she is raising it with the school's senior admin. I also sent a link to my contact at TAFE, and the Australian Arrowsmith program as it may be a useful supplementary professional development course for teachers involved in this year's pilot in Sydney.

Not bored. Disappointed.

Over the last few weeks A-One's overall Lumosity BPI has stayed pretty steady at around 1000 or 43rd percentile.  He's been playing on average about three to four times a week.  The exciting part is that he is almost at the 50th percentile for Flexibility, and almost, almost at the 10th percentile for Problem Solving.  I'm still trying to convince him to re-prioritise his training preferences with Problem Solving at the top so that he can give himself a good workout in that area.

I asked him today if he was getting bored with Lumosity, because there are other exercises he could try, for example CogniFit.

A-One: It's not so much that I'm bored, but that only a few of the games have a 'Pause' button.  They flash up things so fast that it doesn't give me time to get it right. And sometimes I get only one thing wrong, and it gives me a low score - which is disappointing.  And the Penguin still goes faster than I can, which is cheating. Do they have a feedback section where I can tell them?



Mum: Some of the games might be testing your speed, just above your current level of skill, so that it's stretching you to get better.  Do you know what happens when you play any game against someone better than you?  Like tennis?

A-One: You lose?

Mum (laughing): Yes, probably.  But you get better!  They help you to lift your game. 

A-One: Sometimes you need to pause to do something else, like answer the door or something, and then for that day, you get a low score.

Mum: Well, after your official training for that day you could always do the game again to see how well you could really do without taking a break.  It wouldn't count in your official score, but you'd know how well you've really done.  And that's what really important isn't it?

A-One: Yes, I could do that.

Mum: If you want to send in some feedback, why don't you and see what they say?

A-One: I will, but not now.

Saturday, April 27, 2013

Plateau'ing is normal

Today we looked at A-One's brain training scores over the last week. He seems to be playing about three to four times a week at present.  His scores are still at a plateau; he's now at 42.7th percentile overall.  However his Flexibility has been showing a steady increase, now at 48.2nd percentile.

Mum: I was reading in the Lumosity blog that plateau'ing is a common pattern when learning something new, and that sometimes sharp rises can occur and then be sustained.  That's certainly been your pattern, A-One.  The important thing is that you keep doing it, because your brain is working on it even though it doesn't seem to show in your scores right away.



A-One: Well, I didn't have internet for some days.

Mum: But you do now, so you should play today to catch up.

A-One: Yes, I will.

Perhaps he has been encouraged by his test report.  I haven't managed to get him to try CogniFit yet.

He's a Sharpshooter!

I was listening to a 'Founder Story' of Mike Scanlon, Lumosity's Chief Scientific Officer today.  He made reference to a broader cognitive test that Lumosity members can use every few months to see how their cognitive capacity is going as distinct from how well they are performing in the brain exercises.  (Note: It doesn't seem to work with IE 10, but does with Chrome.)  I can't find a link from the Lumosity website, but I had an email record of the URL from my initial inquiry to Lumosity.

I can't recall why I didn't get A-One to do it initially because that had been my plan.  Perhaps I had thought that limited levels of co-operation were better directed to the actual brain training.

Today he was willing enough to do it.  His test results tell him that his strengths are Speed and Attention. Problem Solving is rated above Memory which is his weakest, even though Memory is his area of strength in the actual exercises and Problem Solving his weakest. The report notes that Attention is good for driving. Imagine that! For a boy who had been told all his life that he needs to be kept on task,  had been on ADD medication for a while, and last year told by the neuropsychologist that he shouldn't get his drivers licence.

I love the encouraging way the report is presented and the smile on A-One's face when he read it: A-One, you are a Sharpshooter! Quick, observant and incisive.  You easily take in information and use penetrating insight to make quick decisions.  With a keen sense of spatial orientation, people with these strengths make natural athletes and navigators.   His overall score also put him in the 'about average' range for people in his age range.

(Would WOW also have something to do with this?)

Mum: See A-One, I think for someone who has your capabilities, it's criminal that you're not out there working or learning an occupation.  And you should be playing to your strengths - get to the gym three times a week!  or Tae Kwon Do or Roller Blading. I'm happy to take you.

A-One: I'd like to go to gym.

Mum: Great.  What time of the day do you want to go - and it should be at least 3 times a week.

He's still thinking about that one.

Mum: For someone who is decisive, it shouldn't take too long for you to make a decision about that.

A-One: I don't think I'd do very well at TAFE, because I struggle with the theory.

Mum: Don't base all your decisions on what you were good at, or not, at school.  Remember all this brain training is to enable you to do those things.  It's not because I'm 'into it' that I'm getting you to do brain training.  It's to make it possible for you to do those things that you are interested in!

A-One: OK.

Friday, April 19, 2013

CogniFit

I've just had a good look at CogniFit.  And it's fun. I saw it referenced in a Friends of SharpBrains LinkedIn discussion.

It's also in SharpBrains list of vendors to watch in 2013/14 and is based on peer reviewed research, although mainly for aging adults. It includes some very interesting features:
  • You can register for free and get some free 'neurons' which is like a currency
  • You can do an assessment first up to get your profile of cognitive strengths and weaknesses as well as how you compare with others in your age range
  • Cognitive abilities are described at quite a granular level e.g. not just Memory, but working memory, short-term memory, contextual memory
  • You can earn more 'neurons' by training and 'unlock' new games by spending your neurons, or you can purchase more neurons (with real money) to play more
  • You can bet your neurons to win more
  • You can challenge other players
  • The training is tailored based on your assessment
  • It's fun


I hadn't investigated this site in depth before because it's pitched to keeping your mind agile as you age, but I think it would be really good for A-One - especially if we can get some other players for him to play with.  It seems to have incorporated the appeal of online multiplayer games e.g. like WOW and the chance of notching up your 'neurons' to play more.

I'm pretty excited about it as it seems to include a number of features that I've been looking for in relation to A-One, in particular the assessments which can be done at any time, the increased granularity of cognitive abilities including planning, the ability to choose specific games for these, and the ability to play with and challenge others.

I've done several training sessions today and have not had to pay any real money. 

(I started using my mouse left-handed several years ago, mainly to ease some tension that had been developing on the right side of my neck from a highly stressful job.  But for these games today I quickly switched to my right hand because the speed challenge sucked me right in!)

Now the hard part is gaining A-One's willingness to try it.

Thursday, April 18, 2013

I'm just not that into it Mum

Mum: A-One, I want to get your scores on the last couple of Lumosity games you've played.

A-One: No, not now!

Mum: I told you about an hour ago that I'd be coming to get your scores.

A-One: Not until I've done my games today.

Mum: I'm not waiting until midnight to get your scores for the last couple of days.

A-One: It won't be midnight.

Mum: All you need to do is 'brb' to your WOW mates!  I'm not waiting until tonight! I've given you plenty of notice.



Under sufferance he logged on to get his scores.

Mum: You're now at 40th percentile overall!

A-One (dully): Yes.

Mum: And you are in the 40s for both Attention and Flexibility!  All you need to do is relearn your tables and number facts and your Problem Solving would shoot up too.

A-One: I know what I have to do Mum.

Mum: Sigh.